Sometimes being a parent really blows. Like when one of my children is struggling and I can't "fix" it. I'm a fixer - if there's a problem, I like to know what it is so it can be resolved. We have had about six months with David where we knew "something" wasn't right, but I couldn't fix it. It's truly a miracle (and probably a mistake) that I'm not medicated at this point, because it's been emotionally a very, very difficult six months for me. We finally have some diagnoses for him. Although I wish the diagnosis was nothing, it's not. He has Tourette's Syndrome and, as if that wouldn't be enough, Sensory Processing Disorder. It's interesting to me, and I think not a coincidence, that both of these disorders are neurological in nature, as was his speech disorder (Apraxia of Speech). While I absolutely HATE that he has these two disorders, I do like knowing what is going on. Because now I can fix it.
David has seen a pediatric neurologist, who we absolutely love, love, love. If you are in this area and need a pedi neuro, email me and I'll give you his name. He was wonderful, and I'm so thankful that we were referred to him. We are starting occupational therapy next weekend at an amazing place called Dream Catchers. Ms. Dana is his OT. I have known her professionally for two years, but in the capacity of my office, not hers. David loves her, and I am very hopeful that she will be able to provide us with the skills to really help him. Unfortunately, the OT is out of network for our insurance, and is only covered at 60%. It's not inexpensive, so we'll really have to make the most of the sessions he has and do a lot of follow up at home. I'm really looking forward to seeing the great progress I know he's going to make.
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6 comments:
Oh Kim, my heart is breaking for David. I am so sorry to hear this news. You guys will all be in my thoughts!
There is a girl in Logan's class (one of his best friends) who has both of those disorders. And you know what? I never even knew about it until her mother called to ask if she could come with her to Logan's late night birthday party last year (it was a camping theme so we had it in the dark so we could have a fire). So hopefully once they get it under control he will be just like everyone else. (HUGS) to you though, I know it has to break a Mama's heart in two.
Kim,
Thanks for the nice comments about our Victorian remodel. I hope if you follow along it will be an encouragement to you to hang in there if possible. I started reading your blog and find it interesting because my oldest grandson, age 4, has apraxia and has been in speech therapy for the past year. They also blog at heersinks3.blogspot.com.
Kim I'm sorry you are going through such a hard time! I can only imagine what it must be like! I hope now that you all have a diagnosis and therapies started that it will help! Hugs to you!!!!
I understand the feeling of relief that comes from a diagnosis. I will pray for growth and progress!
Oh goodness! I'm so sorry to hear about the news. Praying!!!
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